The Huntington’s Disease Project: Removing the Mask will have its Canadian premiere on Saturday, April 23, at The University of Guelph, Ontario.
Built by a group of like minded people from across North America, WeHaveAFace.org‘s documentary provides an in-depth look behind closed doors of those living with Huntington disease, or what has become to be known as ‘the monster’. The documentary has started what has become a movement with the participation of an online international community of regional advocates, activists, caregivers and those who are afflicted with the disease along with their families. Viewers can now watch thousands remove their masks and tell their stories about what this monster truly does to a person and how it affects those they love.
James Valvano, Founder/President of WeHaveAFace.org said, “When we began the project it was always our goal to include the entire Huntington’s community…not just here in the USA. The documentary removes the international ‘mask’ of stigmas via topics never discussed before”.
Many people at risk of inheriting the gene that causes Huntington’s Disease as well as those who may be exhibiting symptoms often do not disclose this information for a variety of reasons ranging from denial to genetic discrimination.
The film’s intention and most recently the WeHaveAVoice Radio show is to empower those with the disease and their caregivers by opening up the dialogue about sensitive topics and allowing medical professionals, law enforcement and people from all walks of life see exactly what this disease does to a person rather than just the textbook definition.
“Sadly, thousands have felt that they needed to hide. The goal is to shout to the world that we are here – no more hiding. Finally we have a face,” says Mr. Valvano who has also tested positive for HD.
The doors to Alexander Hall will open at 12:30 pm and showtime is at 2:30 pm. A question and answer session will follow the show with refreshments and light snacks available.
