Relapsing Polychondritis, or RP as it is more commonly known, is a very rare autoimmune disease characterized by inflammation and deterioration of cartilage. It affects approximately three to five people per 1,000,000. According to RelapsingPolychondritis.org, the disease can occur at any age but generally begins between the ages of 40 and 60.
Tom Christie, Chair/CEO of the Relapsing Polychondritis Awareness and Support Foundation and RP patient, says in a press release, “This documentary is a gift to the autoimmune and rare disease communities. We hope to educate the public and rare disease community on this rare disease and empower advocacy on behalf of those affected by RP.”
The trailer as well as the full documentary are available to view online.
Global Genes, one of the leading rare disease patient advocacy organizations in the world says there are approximately 7,000 rare diseases worldwide with 30 million people in the United States alone suffering from a rare disease.. Of those diseases, 95 percent do not as yet have FDA approved drug treatment. The organization has pledged support for the documentary. Nicole Boice, President and Founder of Global Genes said, “We encourage viewers to learn about this rare disease and understand more about the challenges individuals with RP face every day.”
