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rare diseases News

Medicines Discovery Institute aims to bring new drugs to patients

Cardiff - A new research centre based in the U.K. called the Medicines Discovery Institute aims to bring a new generation of medicines to patients by pioneering the latest in biomedical and pharmacological research techniques.

Mayo Clinic’s new startup to tackle diseases using AI

Mayo Clinic and the technology company nference have launched an innovative new startup to discover and develop treatments for diseases that are not currently addressed through existing medical technology.

Florida woman found to be allergic to herself

Clearwater - Humans have been found to be allergic to just about everything, including sunlight and water. One Florida woman, Julie Reid, has been diagnosed with being allergic to herself.

'Orphan drug' maker sues Canada for trying to lower cost of drug

A U.S. pharmaceutical company is taking the Canadian government to court, arguing the country's drug price watchdog does not have the authority to force the company to lower its price of the drug, Soliris.

First documentary for Relapsing Polychondritis released

The Relapsing Polychondritis Awareness and Support Foundation has released its first documentary, "RP The Ride of My Life," following one woman's journey to live life with purpose while suffering from Relapsing Polychondritis.

Icelandic population genetically mapped

Reykjav - Scientists have performed whole-genome sequencing on roughly 1 percent of the Icelandic population. This is one of the largest studies ever performed of a distinct nation.

Developing gene therapy to lower cancer risks

Gene therapy is the primary method for treating rare, genetic diseases. However, many treatments carry the risk of cancer. A new study has attempted to lower this risk.
 

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