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Als News

Is there a connection between ALS and Lyme Disease? Special

In the U.S. cases of Lyme Disease appear to be rising. Some researchers have drawn a link between the tick-transmitted bacterial infection and the neurodegenerative condition ALS. Jo Ann Simon explains more.

Trent Tomlinson supports the Shine for Susie ALS benefit concert

Country star Trent Tomlinson has rallied for Love and Theft's Stephen Barker Liles in support of his mom's ALS diagnosis, with the Shine for Susie ALS Benefit Concert.

FDA approves drug to treat ALS

The U.S. Food and Drug Administration (FDA) has approved a drug called Radicava (generic name edaravone). The medication is designed to treat patients with amyotrophic lateral sclerosis.

Powder meant to save Ontario miners may be killing them

Massey - Years ago, about 10,000 miners in Ontario, Canada started each work day breathing in a black powder called McIntyre Powder as a prophylaxis against silicosis. But could that powder be responsible for the increased number of neurodegenerative diseases?

New brain implant for ALS patients

Amsterdam - People who have Amyotropic Lateral Sclerosis (ALS-Lou Gehrig’s) lose muscle function and eventually require continual care. A new implant has been developed by University Medical Center researchers that could help those with the condition.

Ice bucket challenge one year on

New York - Last summer the ice bucket challenge was all the rage, with most people carrying out the water pouring task to raise awareness and funds for ALS charities. How effective was the campaign for the charities involved?

Review: 'TransFatty Lives' is an artist's journey with ALS Special

Patrick O'Brien, up until 2005, was known for his weird art films and projects, but it's all put in jeopardy when he finds out he has ALS.

FDA agrees to review new ALS drug

Data surrounding a controversial new ALS drug has been requested by the U.S. Food and Drug Administration (FDA). The review may lead to the drug being released.

Should an experimental ALS drug be made available?

Biotech company Genervon has requested accelerated approval for its experimental ALS drug after a small but promising Phase 2 clinical trial. Will drug authorities allow its use?

Op-Ed: Forget the ice bucket challenge — Marijuana treats ALS

A viral Internet sensation, the Ice Bucket Challenge has raised over a whopping $100 million to fund research into finding a treatment for ALS. Sounds great, except that most of the money is spent elsewhere and marijuana already treats the disease.

Ice bucket challenge raises $100 million

Charitable donations to the charity ALS Association have rocketed in August after its #IceBucketChallenge went viral. Donations have now surpassed $100 million.

Op-Ed: Sixteen ice bucket challenge politicians voted for ALS cuts

Washington - Several U.S. legislators who voted in favor of a bill that cut federal funding for ALS research have, somewhat bizarrely, taken the chilly plunge for charity.

Ice bucket challenge using fire fighting plane goes wrong

Girona - Many people think that the ALS Ice Bucket Challenge has gone way too far, and they could well be right. A Belgian man, taking part in an Ice Bucket Challenge with a spectacular difference, has been injured and is currently in hospital in Girona, Spain.

Op-Ed: Why the ALS Ice Bucket Challenge is absolutely ridiculous

The ALS Ice Bucket Challenge has become nothing more than another ridiculous Internet meme and has done very little to raise awareness about the disease.

Op-Ed: Ice Bucket Challenge: A good cause or a chance to seek attention?

It is the latest fad soaring across the Internet; celebrities are queuing up to have a bucket of ice cold water thrown over their over-sized heads, just to raise some money for charity.

Video: Bush accepts ALS Ice Bucket Challenge, challenges Clinton

Crawford - If you spend any time on social media sites, you have undoubtedly seen a recent flood of videos showing friends, family members, celebrities, athletes and now former presidents getting doused with a bucket of ice water.

Florida legislators introduce bills to legalize medicinal pot

Parrish - Legislators in the Florida state House and Senate have introduced bills that would allow residents of the state to use marijuana for certain medical conditions

Shark fin soup linked to Alzheimer's, ALS, and Parkinson's

The consumption of shark cartilage supplements and shark fin soup has been linked to the development of Alzheimer's disease and ALS (Lou Gehrig disease), due to biomagnification of a toxin produced by algae.

ALS patients and low calorie diet Special

Toronto - Researchers from Canada say low calorie diets are detrimental to ALS patients. The latest study on ALS, better known as Lou Gehrig’s disease, found cutting calorie drastically accelerates the onset and progression, as well as death.

FDA lifts hold of promising drug to treat Lou Gehrig's disease

The FDA has lifted a clinical hold after two years on a promising new drug for Lou Gehrig's disease. The manufacturer believes it could be a breakthrough drug for other diseases such as Alzheimer's, Parkinson's and Huntington's disease.

The Lou Ruvo Brain Institute nears completion in Las Vegas Special

In this time of heated rhetoric surrounding health care in the United States a beacon of hope in nearing completion in Las Vegas, Nevada.

The Birthday of the 'Luckiest Man on the Face of the Earth'

Any devout baseball fan’s knowledge and appreciation for the sport includes the following: “Yet today, I consider myself the luckiest man on the face of the earth.”

Op-Ed: ALS and grieving before death

ALS is a horrific disease that progresses while the motor neurons of the body degenerate and eventually cause atrophy. As my family goes through a rapidly progression, I find myself going through blame and avoidance...grieving before death.

ALS Registry Act Passes US Senate

The ALS/Lou Gehrig's Disease Registry Act, now passed through both houses of Congress, will be useful in finding a cure, or at least better treatments, for this incurable, progressive and usually fatal degenerative neuromuscular disease.

First Personalized Stem Cells A Success As Lou Gehrig's Disease First Target

A new study released in a recent online version of Science reveal that disease specific stem cells have been successfully reprogrammed. Despite some hurdles, this find opens up a wealth of doors with regards to treatments for the fatal disease.

Study Shows Risk of ALS Exposure in Gulf War Veterans Is Time-Limited

A new study says that cases of ALS among soldiers who served in the first Persian Gulf War were caused by certain events during their deployment to the war zone, meaning the exposure and illness is not as widespread as previously thought.

Share Your Stories At The Church Of Bert

Robin Brumett is devoted to her husband Bert. The couple have been together for 40 loving years. Bert was always a vibrant man who is now trapped into a motionless shell. He has ALS. Robin has asked readers of CraigsList to bring the world to Bert.

Studies Suggest Military Service Increases Risk for ALS

There's growing evidence of a potential link between military service and developing amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease.

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Als Image

Label on McIntyre Powder.
Label on McIntyre Powder.
McIntyre Powder Project
Richard Glatzer  Still Alice film-maker.
Richard Glatzer, Still Alice film-maker.
Matt Donnelly
McIntyre powder is a finely ground aluminum and aluminum oxide dust. The black powder was inhaled in...
McIntyre powder is a finely ground aluminum and aluminum oxide dust. The black powder was inhaled into the lungs of the miners.
McIntyre Powder Project

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