I met Bailee only once. She walked in with her family and right away I knew this was no ordinary child. I had spoke with her mother Trish Mewhirter a few times before I had the pleasure of meeting Bailee.
Instantly I was in awe of her mother's strength and passion. When she spoke of her daughter, she spoke with a conviction most may never know. Trish was only 24 weeks along when she was informed during an ultrasound of her daughter's complications. Bailee was born with a birth defect called phocomelia
in which the upper portion of a limb is absent or poorly developed. She also suffers from a form of dwarfism which effects the bottom portion of her body.
According to an article in the Clay County news
, the local newspaper where Trish lives, Trish spoke candidly about the aching in her heart about the news of her unborn child.
I honestly questioned myself, if I was going to be able to handle it.
Trish Mewhirter has proven to be a fighter and a role model for many. This young mother not only cares for Bailee, she also has Bailee's two siblings Morgan and Tyler. Plus two other children in the home of herself and her other half Tom Colburn. Despite being a full time mother, she works three jobs. Yes, three jobs!
When I asked Trish what message she would give to other parents of children with or with out disabilities, she had this message
A message for a parent with disabilities would be Never underestimate your child. A message for parents with no disabled kids would be let them be curious and ask questions. If you discourage the delicateness of the situation it becomes scary and that is when the teasing and the uncertainty of being different starts.
Most cannot imagine the feelings one would experience upon hearing the news your child would be facing lifelong difficulties due to unforeseen circumstances such as the birth defects as seen in young Bailee Parrish. But rest assured, this young fighter is as strong as her mother. Right from the beginning Bailee has been determined and a go getter. She walks, writes, feeds herself, and even plays tee ball and video games.
Bailee's mother had this to say about her daughter's strengths
A lot of people are very much in awe of her.
When other kids attempt to taunt this young lady she is quick to fire back with a smart and witty remark that often leaves the other kids speechless. In a world where bullies often get the last word, this young fighter holds her own.
Bailee's mother spoke of one incident
These kids were calling her stupid, and Bailee's like 'I'm not stupid, I just don't have arms. And if I did have arms I would be smacking you upside the head.
This family is a family that keeps on fighting to make the best of things. In spite of the three jobs and the devotion of this amazing family, life and medical bills can be overwhelming.
Bailee recently completed 1 and a 1/2 years of preschool and will start Kindergarten in the fall. One of the goals the family is working on is special motorized wheelchair that will not only help her get around it will be equipped with the ability to lift her to counter height and back to ground level. The chair will also require a special van to transport the chair as well as the rest of the family.
This is one of the many goals of this family. Another goal of Bailee's is to finish school and attend college to become what she calls a "baby doctor". She wants to be able to hold, feed, and even change diapers. With her mind set there is no doubt she will reach her goal.
A fund for Bailee has been established at their local bank. The Fundraiser named Bailee's Bucket is located at the Cornerstone Bank.
You can mail donations to the bank itself at:
PO Box 185
Clay Center NE 69833
If you would like to inquire about a direct deposit or wire transfer to the fundraiser please call (402) 762-3518 - Susie
The above information is the most accurate way to reach someone regarding
Bailee's Bucket Fund
They are currently in the process of establishing an online link to the fundraiser.