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article imageBubble-skin man goes public in search of cure

By Larry Clifton     Jun 20, 2012 in Health
The incredible medical malady that left his skin covered in tumors has led Chandra Wisnu, of Indonesia, to go public in search of a cure.
Wisnu fears the bubble-like tumors that cover his body may be inherited by his children, according to a NY Daily News report.
Nicknamed the “Bubble Skin Man,” Wisnu wears a ski mask and sun glasses when he goes out, which is a rare occasion. Desperate for a cure, the 57-year-old is publically seeking help for his rare affliction. His medical condition is featured in a one-hour documentary debuting 10 p.m. Wednesday on TLC. Footage for the show was recorded in March and April.
“People have never mocked or ridiculed me directly, but they do stare at me and avoid me. Most people act very strangely around me,” Wisnu said last year, according to The Sun newspaper in Britain.
“It makes me feel very insecure and angry when people treat me differently,” he added.
Winsu started noting bumps appear on his skin at age 19. His condition got worse in the next few years and by age 32 they had reportedly spread to his entire face.
Doctors say the tumors are benign, and could be caused by a genetic condition that started in his nervous system, according to The Sun. The man has tried many skin ointments and other prescribed remedies to no avail.
He and his wife, Nanik Tri Haryani, have four children together.
At first, Wisnu was sure his wife would leave him.
“But I refused,” his wife said, according to The Sun. “Seeing him carry on with his life in spite of his changing appearance was, to me, a sign of great strength, not weakness.”
While the lumps don’t appear to be life-threatening, they are uncomfortable and become itchy and sore in hot weather, according to Winsu.
“People are afraid, they are frightened of my horrible face and worried they might catch the disease,” he said, according to News.com.au.
“So instead I avoid people, I rarely go out except to pick up my daughter from school,” he continued. “And when I do, I cover my head and my face because I don’t want my daughter’s friends to bully her for having ‘the dad with the horrible face.’”
“If there is a chance to get such ... free medication, I will take that chance,” Wisnu said, according to The Sun. “But right now my family is all the treatment I need.”
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