Avery Lynn Canahuati was only five months
old when her doctor diagnosed her with Spinal Muscular Atrophy, type-1, a rare form of incurable SMA that would most likely end her life before she would turn two years of age. The parents of Avery embraced their child and created a "bucket list" of all the things she will accomplish before she passes away.
Avery's father, Michael Canahuati, 31-years-old, from Bellaire Texas, posted
Tuesday on the blog
, that Avery had passed away Monday April 30, 2012.
"Hello everyone this is Avery's father. Avery passed away yesterday sometime around 3pm due to pulmonary complications related to SMA."
"In short, one of her lungs collapsed and she went into cardiac arrest,"
"I immediately performed CPR on her and was able to bring her back to life, but only for a brief period of time before she passed away shortly after arriving at the hospital.”
“Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctor’s appointment only three days ago," her father Michael wrote Tuesday. "While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends."
Spinal muscular atrophy is a group of inherited diseases that cause muscle damage and weakness, which worsen over time and eventually lead to death. There are four types of SMA. SMA Type 1, also called Werdnig-Hoffman disease, is the most severe.