If there’s ever been an inflexible social taboo in human thinking, it’s “madness”. Now, Mad Pride Marches are happening around the world. Tens of millions of people are affected by mental illness. Recognition is overdue by any honest standard.
Mad Pride is about mutual support and rallies in support of rights for people with mental illness.
This isn’t exactly an over-publicized cause. It took 20 years for depression to finally get some general recognition as a disease. Nobody will ever know how much suffering was involved, how many suicides, and how much collateral damage was caused.
Society isn’t good at facing its problems.
Mental illness is the bottom of the heap, socially. It’s a problem other people don’t want, don’t understand, and don’t want to be associated with if they can help it. It’s hard to understand, hard to treat, and hard to relate to unless it affects someone close to you.
Now, the
New York Times has put Mad Pride on the front page. That’s a step forward in social awareness, even if the really tough work is still to be done.
About 5.7 million Americans over 18 have bipolar disorder, which is classified as a mood disorder, according to the National Institute of Mental Health. Another 2.4 million have schizophrenia, which is considered a thought disorder. The small slice of this disparate population who have chosen to share their experiences with the public liken their efforts to those of the gay-rights and similar movements of a generation ago.
Those 8.1 million people represent about 3-4% of the population. That’s a very lonely demographic, and each case is individual-specific. The prognosis is usually a management scenario, not a cure.
Support is where it can be found. Many people have to battle on alone. Some aren’t even diagnosed. Need I say that these people don’t have anything resembling a safety net. It’s hard to admit you need help, and harder to get the help you need.
“Take a pill” leaves a lot to be desired as therapy. For the poor, support is even harder to find. Add Big Pharma’s genocidal pricing policies, the irresponsible, obsolete health policies, and “tough” hardly describes it.
Mad Pride has to be seen as one of the few available mechanisms for making any sort of statement:
Mad pride events, organized by loosely connected groups in at least seven countries including Australia, South Africa and the United States, draw thousands of participants, said David W. Oaks, the director of MindFreedom International, a nonprofit group in Eugene, Ore., that tracks the events and says it has 10,000 members.
RECENT mad pride activities include a Mad Pride Cabaret in Vancouver, British Columbia; a Mad Pride March in Accra, Ghana; and a Bonkersfest in London that drew 3,000 participants. (A follow-up Bonkersfest is planned next month at the site of the original Bedlam asylum.)
David Oaks is no neophyte. His own experience reads like a massive obstacle course.
… Members of MindFreedom International, which Mr. Oaks founded in the 1980s, have protested drug companies and participated in hunger strikes to demand proof that drugs can manage chemical imbalances in the brain. Mr. Oaks, who was found to be schizophrenic and manic-depressive while an undergraduate at Harvard, says he maintains his mental health with exercise, diet, peer counseling and wilderness trips — strategies that are well outside the mainstream thinking of psychiatrists and many patients.
Treatment isn’t standardized. There are common medications, common problems, but the result is whatever happens.
Apparently expectations aren't too high.
If you get another disease, there’s a road map. Not for mental illness. The big ones, like schizophrenia and bipolar, were originally treated by medicine which was horrendously primitive by modern standards. Now, the technology is there, but the industry isn’t trying too hard. That 4% or so also isn’t a great sales demographic.
The internet has created online forums like the
Icarus Project, a New York site which gets 5,000 hits a month. There are a lot of support groups which are more or less creating themselves. Icarus says it’s “Navigating The Space Between Brilliance And Madness”.
What, there’s another space?
There’s even
Madness Radio, a massive page with so much content it’s hard to describe.
This is support where there was none. The hideous desert of mental illness may not yet be a garden, but there’s an awful lot of wildflowers showing up.
